MSAA: Publications - The Motivator: Fall 2009 - Program Notes
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Home > MSAA Publications > The Motivator > The Motivator: Fall 2009 > Program Notes
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Program Notes

Volunteer Initiative Aims to Reach More People

The need for volunteers to help MSAA has never been greater. Given the nation's economic downswing, donations to virtually all charities have been greatly reduced. For this reason, we look to dedicated individuals from across the country to help us meet the demand for MSAA's urgent programs and services, all aimed at enriching the quality of life for everyone affected by MS.

In July, MSAA launched a major initiative designed to fulfill the needs of people affected by MS, and to reach more people in more locations. The staff at our regional offices has begun to actively recruit and train individuals as well as groups of committed volunteers to help MSAA achieve three specific objectives:

  • Assist in organizing local patient education programs and events
  • Spread the word about MS and MSAA's services
  • Assist in raising much needed funds for MSAA's programs and services

MSAA's regional staff members will work closely with these individuals and groups to achieve one or more of the objectives mentioned. MSAA President and CEO Doug Franklin talks about some of the recent achievements of our dedicated volunteers in the "Up Front" column on page 2 of this issue.

Volunteers do not need to have any special skills or training; just some time and a strong desire to improve the lives of people who are coping with this disease. Some of our most successful volunteer initiatives are led by people who have MS and remarkably, still find the time and energy to help others.

You can help make a real difference in the lives of individuals affected by MS. Please call MSAA at (800) 532-7667 or email and let us know about your fundraising ideas. Please contact MSAA today!

Cote Carnival For MSAA

The Second Annual Cote Carnival held at Swanky Bubbles Restaurant in Cherry Hill, NJ raised over $27,000 for MSAA. Left to right: Vince Frankowski of Swanky Bubbles; Philadelphia Flyers forward Riley Cote; MSAA President & CEO Doug Franklin; and Ira Zipper of Swanky Bubbles.

Live Webcasts Now Join MSAA's On-Demand Educational Videos

As a way to reach more clients in more locations, the MSi ("Multiple Sclerosis information") section of MSAA's website now includes live video webcasts. Over the past few years, we have produced and posted nearly two dozen, quality on-demand educational videos on multiple sclerosis, its symptoms, its treatments, and strategies to improve one's quality of life. Now complementing these videos are live webcasts, beginning with a four-part series on mobility and multiple sclerosis.

Sponsored by grants from Acorda Therapeutics and Eli Lilly and Company, Staying One Step Ahead made its live debut on October 15, 2009. With the focus on communicating issues of mobility to healthcare providers and family members, this one-hour program featured Dr. Kathleen Zackowski. During this webcast, Dr. Zackowski explored our understanding of mobility, explaining the importance of occupational therapy, and giving a PowerPoint slide presentation on safety and adaptive equipment. She included a video tour of her unique Motion Analysis Laboratory at the Kennedy Krieger Institute in Baltimore, Maryland.

Because the program was live, online viewers had the opportunity to submit email questions directly to the presenter and have her respond during the program. As an extra benefit, all live webcasts will be archived as on-demand video programs for 12 months following their broadcast. You can view this program now at

The second live video webcast, which is part two of this series, is titled Exercise and Multiple Sclerosis. This is scheduled for Thursday, January 21, 2010 at 8:00 pm eastern time. Registration for this program will soon be available on MSAA's website at, and e-vites will be sent to our members once the link is posted. We invite you to join us for these exciting new webcasts and to use this live format to present your questions to our experts. As always, happy viewing!

Cranial MRIs Available through MSAA's MRI Institute

As the number of people with inadequate health insurance or no insurance continues to grow, MSAA has expanded its ability to serve more people through its MRI Institute. This program works to secure vital MRI scans of the brain so doctors and their patients can monitor the ever-changing course of their MS.

With the generous support of EMD Serono, Inc. and Pfizer Inc, MSAA's MRI Institute will be able to serve an additional 300 new clients in 2010. If you and your doctor are having difficulty securing a cranial MRI because of finances or lack of adequate insurance coverage, and have not received assistance through MSAA for an MRI in the past two years, please call the MRI Institute at (800) 532-7667, extension 120 or email

Last Updated on Wednesday, 30 January 2013 10:17