By Douglas G. Franklin, MSAA President and CEO
I am proud to announce that MSAA will be giving three important presentations at the Consortium of Multiple Sclerosis Centers' (CMSC) Annual Meeting this May in Denver, Colorado. The first topic is "startling," a possible new MS symptom based on reader feedback from MSAA's past issues of The Motivator. The second topic explains the positive impact that MRIs have on patients' treatment decisions and overall healthcare. The third topic is on the premise that guided imagery (a relaxation technique) may be used to ease injection anxiety associated with disease-modifying therapies for MS.
Also at the CMSC meeting, several MS Coalition (MSC) members will present a joint workshop on advocacy, focusing on awareness of important public policy issues for MS – especially with state and federal legislators. At the CMSC meeting, we welcome The Heuga Center for Multiple Sclerosis as a new member of the MSC. Additionally, several MSC members, including MSAA, will be participating in the National Multiple Sclerosis Society's (NMSS) Public Policy Conference in May. This will be the third time I am attending this vital conference, which is held in Washington, DC.
Continuing our collaborative efforts, MSAA is working with the NMSS on developing better ways to serve the primary-progressive MS (PPMS) population. A joint conference held in Dallas, Texas this past February has yielded valuable information. One of our key goals will be to improve the quality and availability of PPMS information. In March, MSAA teamed up with other MS organizations to advocate for increased MS research funding as a part of our recognition of MS Awareness Month.
In April, MSAA hosted a President's Circle event in New York City to recognize some of MSAA's most generous donors. Held at the Metropolitan Museum, this was a proud night for MSAA, featuring talks by some of MSAA's Board members and a patient advocate to more than 60 attendees.
MSAA is moving forward in the expansion of our public education campaign for promoting therapy treatment adherence. Over $500,000 of donated television air time has helped MSAA's public service announcements (PSAs) reach thousands of people across the country. With support from Teva Neuroscience and Bayer HealthCare Pharmaceuticals, MSAA will also be producing and distributing radio PSA's in conjunction with outreach to additional TV markets.
In closing, March was the final month of nine years of service to MSAA by Board Member Jim McGuinness. Always prepared and ready to help, Jim is a wonderful example of what good governance is all about. His sense of humor and humility will always be remembered as MSAA grows in the years ahead. Jim is everything that we could want in a volunteer, leader, supporter, and friend. Thank you, Jim!
Doug Franklin joined MSAA as President & CEO in 1999. He has a distinguished career in association leadership and is a former national trainer in strategic planning for the Peter Drucker Foundation. A published international expert in the field of social marketing, he is a graduate of four universities. He currently serves: on the National Board of the Key Philanthropic Organizations Committee of the American Society of Association Executives; on the Executive Committee of Health First -- America's Charities Board in Washington, DC; and as president of the Multiple Sclerosis Coalition.
|Last Updated on Monday, 25 March 2013 11:07|