Through a generous donation from Novartis Pharmaceuticals Corporation, MSAA now has the seed money needed to launch its Resource Detectives Program in full swing. This program was developed more than two years ago from a wonderful concept, which gives people the opportunity to help others while performing volunteer work from their own home on their own schedule.
The Resource Detectives Program will be recruiting volunteers, particularly individuals with MS, to serve as "detectives," who will play a vital role in educating members of the MS community and creating a massive database. This national resource will ultimately provide an inventory of local MS centers, professionals, agencies, and additional support systems to be accessed by individuals with MS, family members, and care partners.
Independence is just one of the many benefits which the Resource Detectives Program will provide. Members of the MS community will be able to access local resources on their own, without going through a lengthy search process which may or may not yield the best services for their needs. Through this initiative, MSAA continues its efforts to reach more people in more places across the nation. For more information, please refer to the article on Resource Detectives, which begins on page 30.
In other news, the MS Coalition is moving forward with great momentum. For those not familiar with this group, the MS Coalition is an affiliation of several independent MS organizations dedicated to the enhancement of the quality of life of all those affected by MS. Its mission is to increase opportunities for cooperation, and provide greater opportunity to leverage the effective use of resources for the benefit of the MS community.
The MS Coalition is presently seeking 501(c)3 status, which will register the group as a formal charity. Recently, members of the Coalition worked together to establish an MS Caucus in Washington, DC, to advocate for the MS community and to support such vital issues as funding for MS research and legislation to benefit individuals with disabilities.
MSAA also participated as an exhibitor this spring at the American Academy of Neurology's Annual Meeting and the Consortium of Multiple Sclerosis Centers' Annual Meeting. These are always ideal forums in which to meet with other organizations, pharmaceutical companies, and equipment suppliers, to share information and discuss new ideas. Several MSAA staff members attended lectures and workshops to learn about the latest in MS research, treatments, and patient care. For more information, please see our cover story on page 7.
MSAA is expanding its operations across the country and this summer we are as busy as ever. We welcome your input to our efforts and seek your ideas and support. Together we can all make good things happen!
Doug Franklin joined MSAA as President & CEO in 1999. He has a distinguished career in association leadership and is a former national trainer in strategic planning for the Peter Drucker Foundation. A published international expert in the field of social marketing, he is a graduate of four universities. He currently serves on the National Board of the Key Philanthropic Organizations Committee of the American Society of Association Executives and serves on the Executive Committee of Health First – America's Charities Board in Washington, DC.
|Last Updated on Monday, 25 March 2013 10:29|